experiences of borderline ovarian cancer
http://ovariancancerday.org/about-ovarian/5-facts-everyone-should-know-about-ovarian-cancer/An important article was published in The Guardian yesterday. But I don’t entirely agree with the article (for many reasons). The 103 women who I’m connected with across the globe who have the same diagnosis as me have had a range of experiences - many DID visit their GPs and in good time… but were told not... Continue Reading →
A year ago I was just waking up from surgery. In fact, it was probably about now that I was shouting obscenities at the ever-patient nurses from the recovery room as they wheeled my bed over what felt like The Biggest Bump in the world into the lift. I cursed, I screamed. Then we had... Continue Reading →
A tool to assist women to engage with their GPs.“The Symptoms Diary app is free to download, and will help women accurately record their symptoms and communicate more effectively with their GP. The app reminds women to record the symptoms they are experiencing once a day and prompts women to book an appointment with their... Continue Reading →
“Now that women are discouraged from initiating estrogen therapy, those who undergo oophorectomy at a young age and do not initiate or continue estrogen therapy until at least the age of natural menopause are at significantly increased risk for several chronic diseases of aging.”It’s an ongoing debate, mostly (from what I’ve understood) as a result... Continue Reading →
Today, the (female) sonographer asked me when I’d had my surgery and then asked if I had kids. I said nearly a year ago and no, no kids. She said “ag, shame”, looked sad, and that was the end of that conversation. Then the (male) radiologist came in, asked me how I was diagnosed, said... Continue Reading →
WOO HOO!Latest 3 month follow-up: CA125 is 10 (under 35 is normal; mine was 2,257 at diagnosis) and TV US remains CLEAR![Will have abdo/pelvic ultrasound on Monday as part of monitoring plan and a way to double check no recurrence elsewhere]Image from www.sodahead.com
Remember that pesky fibroadenoma in my left breast? Well; good news: IT’S SHRUNK since the March scan, due to a reduction in my oestrogen dosage. We’ll monitor but no imminent surgery. Happy days. Happy Friday, y’all. x
#StillaWoman is, apparently, a hashtag of choice, chosen by someone, somewhere for this month’s first ever Hysterectomy Awareness Month. WTF.[I’ll leave my rants about specific-health-condition-awareness-days-and-months for another time.]You are, apparently, all invited to join in and show your support and to remind women like me feel that we’re Still A Woman. You can do this by choosing... Continue Reading →
Very useful article that nicely summarises the fact that there is no standard management of this frustrating, rare diagnosis!Some helpful recommendations that can be (should be) used to advocate for PROPER follow-up and monitoring.There are currently no evidence based criteria for individualised patient tailored management and equally no unified international or UK national protocol for... Continue Reading →
The thing is, a borderline ovarian tumour (BOT) IS cancer. Yes; it’s borderline. No; it’s not the same as “typical” ovarian cancer (OC). It’s got a low malignant potential; it’s slow growing and may or may not become malignant… But many healthcare providers do (correctly) refer to it as borderline, grade zero, OC. And, from recent... Continue Reading →
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