experiences of borderline ovarian cancer
WOO HOO!Latest 3 month follow-up: CA125 is 10 (under 35 is normal; mine was 2,257 at diagnosis) and TV US remains CLEAR![Will have abdo/pelvic ultrasound on Monday as part of monitoring plan and a way to double check no recurrence elsewhere]Image from www.sodahead.com
Remember that pesky fibroadenoma in my left breast? Well; good news: IT’S SHRUNK since the March scan, due to a reduction in my oestrogen dosage. We’ll monitor but no imminent surgery. Happy days. Happy Friday, y’all. x
#StillaWoman is, apparently, a hashtag of choice, chosen by someone, somewhere for this month’s first ever Hysterectomy Awareness Month. WTF.[I’ll leave my rants about specific-health-condition-awareness-days-and-months for another time.]You are, apparently, all invited to join in and show your support and to remind women like me feel that we’re Still A Woman. You can do this by choosing... Continue Reading →
Very useful article that nicely summarises the fact that there is no standard management of this frustrating, rare diagnosis!Some helpful recommendations that can be (should be) used to advocate for PROPER follow-up and monitoring.There are currently no evidence based criteria for individualised patient tailored management and equally no unified international or UK national protocol for... Continue Reading →
magicˈmadʒɪk/adjective: magic- having or apparently having supernatural powers “confidence is the magic ingredient needed to spark recovery”
It’s been a week of frustration and fear, relief and realisation, mayhem and madness. SO I decided it was time for a new ‘do. A do-over; I declare that 2015 officially starts here, now, today. Happy Friday everyone xx——-TUESDAY: I’m (trying) to buy a house by the sea. A retreat from the crazy-wonderful city I... Continue Reading →
Be informed.Download an excellent leaflet about symptoms here.We are badly informed about the symptoms ovarian cancer and borderline ovarian tumours. The symptoms are very general and non-specific and often leads to misdiagnosis. This is why ovarian cancer tends to have such a poor prognosis: early diagnosis has a very good prognosis but sadly most women... Continue Reading →
I eventually got a copy of my path report in colour. I didn’t manage to get a photo of my tumour (I asked but some unexpected bleeding during surgery meant the team were otherwise engaged and unable to snap away on their iphones as previously promised…) so this is a good second best. There’s something... Continue Reading →
Today is another good day. I’ve been awaiting my CA125 blood tests; this is a non-specific cancer antigen that is often - but not always - elevated in women with ovarian tumours. Below 35 is the normal range. At diagnosis, it was 2,257: very elevated. Today, it’s simply seven. Taken alone, a CA125 level is... Continue Reading →
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jozi-ovari 