I heart evidence based medicine. I do. But - as an advocate for evidence based medicine - how do I make decisions about my health when there is so little evidence, and the evidence that does exist is - due to the nature of there being so little - conflicting? A diagnosis of a... Continue Reading →
Yesterday was a good day. I was in London and I had my first follow-up ultrasound post-op. IT WAS CLEAR. This is very, very good news. I will see my consultant on Monday, and have my CA125 blood test and examination. Yesterday was exactly 27 weeks since my operation. I’ll have monitoring every 6 months... Continue Reading →
As 2014 drew to a close yesterday evening, I watched the most stunning sunset along the Bushmans River Mouth in the Eastern Cape (South Africa). Incredible colours in the sky, reflected along the river; I could feel the trauma of the past 6 months drift away, out to the Indian Ocean, along with the tide.... Continue Reading →
BOT-affected advice/input to develop factsheet to support our engagement with the health system
From discussions in the Facebook group, it is clear that those of us who have had a BOT diagnosis have some important experiences and insights about engagement with healthcare providers and the healthcare system when undergoing a diagnosis, treatment and monitoring for BOT. These insights would be very helpful to others including BOT-ladies, their families... Continue Reading →
Hysterectomy Association
This is a supportive space. You can also sign up for support via email and the team send emails each day post-operatively. I found this really helpful. There are also a range of testimonies from other women, with advice on how best to prepare for your op, and some tips around recovery. http://www.hysterectomy-association.org.uk/
Ultrasound + CA125 = dream-team-monitoring
According to the literature the most effective follow-up method in BOT patients is represented by the combined scheme of serum CA-125 determination and abdominopelvic ultrasound evaluation.
BOTs: aggressiveness and monitoring
Good article. Borderline ovarian tumors (BOTs) were first described as a separate group in 1929 by Taylor [1] , but only in 1973, they were accepted by the International Federation of gynecology and Obstetrics (FIGO) as carcinomas of low malignant potential [2] and from 1973 by the World Health Organization (WHO) as ‘borderline ovarian tumors’ [3] , the... Continue Reading →
