experiences of borderline ovarian cancer
I eventually got a copy of my path report in colour. I didn’t manage to get a photo of my tumour (I asked but some unexpected bleeding during surgery meant the team were otherwise engaged and unable to snap away on their iphones as previously promised…) so this is a good second best. There’s something... Continue Reading →
Today is another good day. I’ve been awaiting my CA125 blood tests; this is a non-specific cancer antigen that is often - but not always - elevated in women with ovarian tumours. Below 35 is the normal range. At diagnosis, it was 2,257: very elevated. Today, it’s simply seven. Taken alone, a CA125 level is... Continue Reading →
I heart evidence based medicine. I do. But - as an advocate for evidence based medicine - how do I make decisions about my health when there is so little evidence, and the evidence that does exist is - due to the nature of there being so little - conflicting? A diagnosis of a... Continue Reading →
Yesterday was a good day. I was in London and I had my first follow-up ultrasound post-op. IT WAS CLEAR. This is very, very good news. I will see my consultant on Monday, and have my CA125 blood test and examination. Yesterday was exactly 27 weeks since my operation. I’ll have monitoring every 6 months... Continue Reading →
As 2014 drew to a close yesterday evening, I watched the most stunning sunset along the Bushmans River Mouth in the Eastern Cape (South Africa). Incredible colours in the sky, reflected along the river; I could feel the trauma of the past 6 months drift away, out to the Indian Ocean, along with the tide.... Continue Reading →
From discussions in the Facebook group, it is clear that those of us who have had a BOT diagnosis have some important experiences and insights about engagement with healthcare providers and the healthcare system when undergoing a diagnosis, treatment and monitoring for BOT. These insights would be very helpful to others including BOT-ladies, their families... Continue Reading →
According to the literature the most effective follow-up method in BOT patients is represented by the combined scheme of serum CA-125 determination and abdominopelvic ultrasound evaluation.
Ovarian serous papillary borderline tumour.
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